My Blog

February 20, 2008

I remember when I first started on tx and was busy logging every side effect, headache, palpitation or whatever and looking at the forum and seeing people writing in at week 29 and wondering how on earth they managed to last as long as that on treatment with all that they were suffering.  They were veterans, people to look up and listen to and I was in awe of them.  These people will have completed 48 weeks or be carrying on to do a 72 week stint (ouch) now but they are still members of the forum and still write in, cheering up the newcomers, offering advice to anyone with problems and just generally sharing their experiences.  It is a very close knit  community and I have made some good friends that, in the normal run of life, I would never have known.  It's not just heppies - people who suffer from cystic fibrosis, for instance, also have their own forums as do cancer patients.  A great big network of people helping each other 

Well, I don't feel very brave after completing 29 weeks all I want to do is get to week 48 and get it over with.... I have started to have vivid dreams, not every night but once or twice a week and they arn't very nice.  I've also got terrible "itches" ... on my legs, tummy, sides, arms and I could scratch them raw they are that bad.  Piriton is supposed to help, as are creams, but they only give temporary relief.  It just seems to be the next stage I've reached.

I didn't feel too tired this morning considering it's Wednesday, so estee and I popped off to the supermarket and got stocked up for the next month.  I found a lovely rye bread with raisins but no yeast, its delicious with a spot of soya margarine on it. And some lovely spelt biscuits with ginger and walnuts.

I rang the hospital yesterday to try and get to know if my pcr results were through but Dr Sree's secretary is away on annual leave until next week and I don't want to speak to Dr Sree really, so will have to be patient until next week when I got to see him.